Embracing the life that we have been given!

Do you remember when you got your diagnosis? Maybe you remember everything about that day. Like what you were wearing, what the weather was like, or what you had for dinner. For some of you it may have been like falling off a cliff and never reaching bottom, A nightmare that became reality.  Many of us have a common thread that runs through our bodies, unfortunately, our thread started to ravel and became the disease we live with today .

Focus on the positive

My disease was not exactly a surprise. You see, my sister had been diagnosed in 1996. After a misdiagnosis of Parkinson’s disease she was eventually properly diagnosed with Hereditary Neuropathy. You would think her diagnosis would have made mine a breeze to accept. Not exactly! If anything it made me run scared from any trip, fall, muscle twitch, muscle cramp or really any malady. I did not want to accept that I was losing the genetic crapshoot. My life would forever change with that roll.

That’s it my friends! We need to focus on what we have, not what we have lost. What we can do, not what we can’t!

That is why I am starting this blog, to reach others and let everyone know that we are going to be fine, yes, life does become difficult many times, but if you’re anything like me you just roll with the punches.

I am a certified teacher, but I had to give up my position due to my disease. Teaching became way to difficult to navigate my body through the course of the day. The part that really stinks is, I loved teaching. I truly enjoyed instructing my students in their academic content but also teaching life lessons.

After that experience I embraced my life in a new way. No one would choose to be disabled, but since I am and I have only one life, I’m going to make it count. I’m going to Rock That Cane and let the world know I’m here.

Dawn - Rock the Cane

Let's face it, we all have to adapt...Sometime!

“There can be no life without change, and to be afraid of what is different or unfamiliar is to be afraid of life.” Theodore Roosevelt

W0W! President Roosevelt said it so well, like he was speaking specifically to us, the people whose disease was thrust upon them., without warning. To be fair, everyone has challenges . Our challenges evolve with the progression of our disease. Eventually, there comes a time we have to think about two little words: Adaptive Equipment.

Time To Adapt

In the beginning of my disabled journey, I would use just my legs to keep me firmly planted on the ground., although,  not always firmly. Then following a few physical therapy sessions, and a few knee surgeries, I began to need a cane for stability. Next, for walking for any great distance I started using a mobility scooter.  I learned through my journey that mobility is everything.! We have to let go of what was, and embrace what is.

I remember the first time I used a mobility scooter. Let’s just say, for the record, I was less than thrilled. The adjectives that adequately describe my feelings were: embarrassed, ashamed, horrified, and  terrified.  I developed a much different view when I began to see how great it was to be able to go places with my family. I was finally able to go just about anywhere and not have to worry about walking for a long distance.

I share my story to help my readers see any type of adaptive equipment as improvement in the quality of their lives. Remember, whatever we do, we can do it with style.

Dawn - Rock the Cane