Do you remember when you got your diagnosis? Maybe you remember everything about that day. Like what you were wearing, what the weather was like, or what you had for dinner. For some of you it may have been like falling off a cliff and never reaching bottom, A nightmare that became reality. Many of us have a common thread that runs through our bodies, unfortunately, our thread started to ravel and became the disease we live with today .
My disease was not exactly a surprise. You see, my sister had been diagnosed in 1996. After a misdiagnosis of Parkinson’s disease she was eventually properly diagnosed with Hereditary Neuropathy. You would think her diagnosis would have made mine a breeze to accept. Not exactly! If anything it made me run scared from any trip, fall, muscle twitch, muscle cramp or really any malady. I did not want to accept that I was losing the genetic crapshoot. My life would forever change with that roll.
That’s it my friends! We need to focus on what we have, not what we have lost. What we can do, not what we can’t!
That is why I am starting this blog, to reach others and let everyone know that we are going to be fine, yes, life does become difficult many times, but if you’re anything like me you just roll with the punches.
I am a certified teacher, but I had to give up my position due to my disease. Teaching became way to difficult to navigate my body through the course of the day. The part that really stinks is, I loved teaching. I truly enjoyed instructing my students in their academic content but also teaching life lessons.
After that experience I embraced my life in a new way. No one would choose to be disabled, but since I am and I have only one life, I’m going to make it count. I’m going to Rock That Cane and let the world know I’m here.