A Day Out Can do Wonders for the Soul!

Some days are just fun! On a Friday morning my husband loaded up my scooter, and we headed out for a day at the zoo.  What a perfect day with crisp, fresh air and gorgeous sunshine.  Some days our circumstances can envelop every part of our soul, but seeing the beauty that surrounds us gives hope for another day.  Everyone needs a day for the Soul.

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What kind of day heals your soul?

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It not just a cane........it's a lightsaber too!

My disability brings about all kinds of fun for my Grandsons.   The adaptive devices that I depend on for mobility and balance, begin to do double duty.  To a child, my home looks like an amusement park.   My Grandsons have fun playing with my cane and my lift chair.  Many times I will look for my cane, but lo and behold, it has been snatched and is being used to fight off stormtroopers.  

My chairlift, in their eyes, has become a great way to escape from pirates or alligators. I love that they look at my adaptive equipment with a sense of fun and wonderment.  The pure simplicity of a child is pure joy!

Does your home become a play land, too?

Do Overs!

If you had the chance what would you change about your day?  What would you"do over"?

 

Many people keep a journal of the things they are thankful for in their lives.  But I'm going to journal in a different way.  I'm writing a, "Do Over Journal !"

Each night before bed I'm going to think about my day and journal what I would do over if I could. Maybe I would show more patience to the grocery clerk, pray more, or even give more hugs and kisses to the ones I love.  Since my disability is a huge part of my life, some of my do overs would be specific to that.  (Ex: I shouldn't have written a nasty note to the monster truck owner parked in a handicapped parking spot.)

My,"Do Over Journal," hopefully will serve a purpose.  By re-examining my daily behavior, I will make lasting change.  Well, I can always hope!

What would you do over?

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What the new me would tell the old me!

I would love to talk to my young self!   I would tell her that her body was absolutely amazing and would plead with her to take good care of it.  I am like most people when they were young.  I ate bad food, slept way too little, and thought exercise was walking to the car.  My body was something I rarely thought about and it was taken for granted.

The human body seemingly works with little effort, but in reality it's a well choreographed dance, "The Dance of Life."  Each and every blood vessel, nerve, muscle, and bone has a particular job.   It was only when my health started wavering that I gave my body a second thought.  There are many interesting facts that detail how our bodies work.  Here are a few:

1. Nerve impulses travel to the brain at speeds of up to 250 miles per hour to and from the brain, faster than a Formula 1 race car.

2. Our muscles are actually more powerful than they appear to be.  Human strength is limited to protect our tendons and muscles from harming themselves.   This limitation can be removed during an adrenaline rush, during which some people have lifted boulders or even cars off themselves.                                                                 

3.  Human bone is as strong as granite. A block of bone the size of a matchbox could support nine tons of weight.

There are more fascinating body factoids you can find at:

http://distractify.com/old-school/2014/07/20/amazing-facts-about-the-human-body-1197776387

www.disabledworld.com

http://www.factslides.com/s-Your-Body

So we all need to show some respect for our hardworking bodies!  Even if we suffer from an illness or injury, our bodies continually work hard and do their best, each and everyday.

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Nana don't...........anymore!

Safety is more than just a word, it's a way of life for this Nana. (My precious grand boys call me, Nana)  I am in pretty good shape, but a fall with a hit on the head could be catastrophic .  Because of this my daily rituals have changed, somewhat. There are things that Nana just won't do anymore.  Nana don't play!

I love candles: the look, the glow, the smell.  If your house is bathed in the warm glow of candlelight even the biggest messes will be overlooked.   However, I don't think it's smart for me to be working with an open flame.  Nana doesn't want 3rd degree burns, so now Nana uses flameless candles.  They're a great substitute for the real thing, but I do miss the smell.

One of my favorite things to do is cook.  I could spend hours preparing great meals for my family. My cooking routine has changed somewhat since it's harder to carry hot pans safely. Especially pans of boiling water. Ouch!   So whether I'm making pasta or boiling a lobster, now I wait till someone in my family can carry the pan.  Nana doesn't want to be painfully red as a lobster!

When it comes to vertical height let's just say that I got left out.   I'm very short so many times things are out of my reach.  In the past I would just whip out my trusty old step stool, but now............NOT!  I could see myself getting dizzy and falling off.   It truly is the recipe for disaster! We tried to arrange our home where the things I use are in easy reach, and if that doesn't work I just yell, Someone Help Me!

So this Nana plays it safe!  With a disability you can still achieve your goals, you just have to   approach them in a different way.

What changes did you make?

In Praise of the Caregiver!

“Caregiving often calls us to lean into love we didn't know possible.” 
― Tia Walker

Today I will give praise and honor to the caregivers in our lives.  What would we do without them?  They give so much of themselves each and every day.   Whether you are in need of a full time caregiver, part time, or just a helping hand from time to time, caregivers play a huge roll in a disabled persons life.  Many times the caregiver in our life is exhausted, frustrated, and overwhelmed, but that doesn't stop them from caring for us.  They trudge forward and do tasks that make our lives better.

At this stage of my illness I am pretty much independent.  I still drive, cook and clean and do just about anything else, always with safety in mind.  Even though I still have a great deal of independence I still need help from time to time.  When I do my family takes on the roll of caregivers. Their support, love, and physical help is greatly appreciated.  I know that there is a possibility that as the years go by I may need a higher level of caregiving, but I know they will always be by my side. How blessed am I ?

Many people have paid caregivers.  They are equally important!  Just because they're paid for the gig doesn't change the fact that they have a difficult job.  

So let's give our caregivers, whomever they may be, a big thank you! I bet you'll make their day.

Do you have a special caregiver? 

Please Sir, may I have some more?

There are days I still feel like this!

During my tenure as a disabled person I have met many wonderful people.  There are so many out there who are patient, respectful, and kind.  From opening doors, to giving up their seats,  I have had such kindness shown to me on many occasions, and for this I am very thankful. 

There however have been a few times when I have come across people that are hateful, to say the least.  When I encounter a person like that I think of the phrase from Oliver, " Please Sir, may I have some more?"  That phrase fits perfectly because , "WHAT DO THEY WANT FROM ME?"   If you feel like acting like a total jerk just give me all you've got! 

!. To the man who watched me going  to my parking spot and became very exasperated at my slow pace, your impatience only makes me go slower.  I get nervous when I rush!  I hope the fit you were throwing made your day brighter.  So to you I want to say;

2. To the man who was on the bus with me and my husband,  your behavior towards my slowness was totally inappropriate.  I can only go so fast!  My husband and I were having a wonderful date night.  You were lucky by the way, my husband nearly decked you!  Do you honestly think by  talking out loud about the slow woman would make me move faster?  It actually made me much slower.  Well sir, to you I have to say:

 I hope they someday realize that being disabled was not my choice.  I would love to be able to move quickly, but that is not in the cards for me.  

Wow!  I have only two experiences that stand out in my mind.  That's not too bad! 

Have you had experiences like these?